The annual National Niemann Pick Disease Family Conference will be held on August 15-18, 2019, in Bloomington, US. The conference has been organized by National Niemann-Pick Disease Foundation. Both CTD Holding, Inc. and Mallincktodt Pharmaceuticals, two companies involved in the development oof HPBCD therapy for Niemann Pick disease type C, are among the sponsors.
Among several lectures useful for the families with member(s) suffering in rare diseases the ongoing clinical trials for NPC patients will be introduced.
The deadline for registration is July 16, 2019.